I was hoping you you post Kitsa. I know you weren't trying to make it about you, but our situation is very in line and I thank you for you story.
I see a Rhuematologist for my issue every month. I too was a high paid employee 40 hours a week up until last year. I've been hiding my condition and avoiding disability up until I finally got fired over my performance. I became really really ill last year. I now realize that any job I take, I can't perform at the level they pay for and I would only harm companies and other people who need to be in the work force
I'm looking to work maybe 2 days a week. Cover someones weekends. I know that when I was a manager I would have loved to have help on the weekends for free.
I know all about the reactions. I look perfectly healthy, it's all on the inside for me. Nothing shows. I have huge bouts of energy that the public sees, and huge bouts of lazziness that only my family sees. I've also been on the forums for people with my condition, so I know what to expect. I won't be using any placard unless I go to Disneyland. People are huge assholes when they think they know it all and my family doesn't need to be punished for it.
Thanks Kitsa, you make me feel normal
